Hillary Savoie, PhD is the Director of Community Engagement and Communication at Neurvati Neurosciences. Prior to joining Neurvati, Hillary worked as a rare disease advocate, patient engagement consultant, and writer. She is also a mother. Her daughter Esmé, who is medically and developmentally complex, has served as the inspiration for her work in rare disease. Hillary founded The Cute Syndrome Foundation, which focuses on a rare genetic and developmental encephalopathy, in 2013. She served as Executive Director at TCSF for 9 years and now serves on the Board of Directors. Her personal essays and reported features about life with medically-complex children which can be found on Romper.com, New York Times, Rolling Stone, and the podcast Story Collider, among others. Hillary holds a doctorate in Communication and Rhetoric from Rensselaer Polytechnic Institute (RPI).